Cancer is something that is terrible even if it does not give you the early death sentence from diagnosis it is with you day today with the constant waiting game.
I am doing quite well in my self and as I say I look ok. I have put a lot of weight on in a short period of time ( and its not from eating all the cupcakes) I do not eat them.
I think it is the wine that I am drinking so after this weekend its going to be a detox and no wine for a while well will see how I go.
I had a lovely weekend with a friend the other week relaxing and an opportunity to do some Qigong and Chi Balls, and palites.
Cancer has effected me in more than one way and the people around me, I have lost friends and family to this disease over the years and my daughter recently lost a Friend just after the girls19th Birthday, and another persons mother lost her battle yesterday . My thoughts are with these people and my prayers .
My friends and Family across the pond are dealing with this also and I would like to add the bit from this mothers plight that gives you an in site into the thought of families and decisions that have to be made.
A very hard update.
It's with a very sad and heavy heart that we must inform all of you that Rylie's time is near it's end. After consulting with her Dr team today with the recent progressions of the tumors and not responding at all to the chemotherapy we have decided that the best thing left for Rylie to for us to be a family and enjoy our last few days together in the hospital. We have decided not to move forward with chemotherapy and have asked that we just keep Rylie as comfortable as she can be for the remaining time that we have. Tonight we have had to have the conversation with Hailee and Makayla about what is happening to Rylie and what is going to happen over the next few days. To tell you that is the toughest conversation that I will ever have in my life is purely an understatement. We have tried to explain to our girls and they have responded and are still asking us a lot of questions about what is going to happen to Rylie.
Today is the first day since all of this started that Karen or I have ever felt like it was unfair. As we go thru the next few days with Rylie we are seeing many of Rylie's different medical team come through to say their own goodbyes to her. To see all the people come thru just shows me how vested they all were in taking care of Rylie. Thank you all for love prayers and support thru these impossible times.
Today is the first day since all of this started that Karen or I have ever felt like it was unfair. As we go thru the next few days with Rylie we are seeing many of Rylie's different medical team come through to say their own goodbyes to her. To see all the people come thru just shows me how vested they all were in taking care of Rylie. Thank you all for love prayers and support thru these impossible times.
