Well at this time of year we always take stock of our life and what it is all about. I have not written for a while but I think it is time to get back in the saddle and up date you about some fun things that have happened and some not so funny.
Well the New Year started with a bit of a bang , on aroutine visit to the physio , next thing in AE waiting for an MRI scan , look they think its bone cancer.....
I am going to start this again and as it evolves over the next few weeks months please bare with me and carry on reading.
This is just a short start of something I started a while ago xx
This is the story of my life and my fight that I have been given.This is for my family, friends to help them and me.
Tuesday, 10 April 2012
Saturday, 13 August 2011
I am coming back
Well what has been happening since I last wrote.
Well took a fab trip on a ship what great family time and some fab people.
Said good by to my CP friend hopefully they will keep in touch.
Also the saddest news is a friend that has not had it easy is also fallen pray to the cancer ..... I am here for her and things are looking on the up.
Well for me I am still here and a blessing I have... I have been to see the GYN again this is where the funny story starts.
The women GYN went to see before the holidays , burnt the cells that had grown and another appoint after holiday went to the next appointment with my mum the problem of having someone that is always away ( where is he now working he will be home sometime on Monday we think) any way. I went in all organised with what I needed to ask we went through it and she examined me again. easy I here you say not with me and my Vagina.( may be thats another story ). We then sat for the final discussion. She says I am going to take you in for an op to remove the growths. ( easy I here you say..sorry not so ) I will cut a V and stitch up , ok then the problem in communication broke down. she says " I am going to keep you in over night " ok I here you say " I am going to put a catheter in " ok I say where as I have got urinary diversion , she says you still have tubes. Loss of faith plus concerns arose no answers came.
I am going to skip to the next bit....
Went to see a 2nd opinion,
I am going to continue tomorrow just to keep you hooked....... see you tomorrow xx
Hugs to you all and to all the brave cancer people I know naff name love and hugs I am here so talk I want to help xx
Well took a fab trip on a ship what great family time and some fab people.
Said good by to my CP friend hopefully they will keep in touch.
Also the saddest news is a friend that has not had it easy is also fallen pray to the cancer ..... I am here for her and things are looking on the up.
Well for me I am still here and a blessing I have... I have been to see the GYN again this is where the funny story starts.
The women GYN went to see before the holidays , burnt the cells that had grown and another appoint after holiday went to the next appointment with my mum the problem of having someone that is always away ( where is he now working he will be home sometime on Monday we think) any way. I went in all organised with what I needed to ask we went through it and she examined me again. easy I here you say not with me and my Vagina.( may be thats another story ). We then sat for the final discussion. She says I am going to take you in for an op to remove the growths. ( easy I here you say..sorry not so ) I will cut a V and stitch up , ok then the problem in communication broke down. she says " I am going to keep you in over night " ok I here you say " I am going to put a catheter in " ok I say where as I have got urinary diversion , she says you still have tubes. Loss of faith plus concerns arose no answers came.
I am going to skip to the next bit....
Went to see a 2nd opinion,
I am going to continue tomorrow just to keep you hooked....... see you tomorrow xx
Hugs to you all and to all the brave cancer people I know naff name love and hugs I am here so talk I want to help xx
Monday, 6 June 2011
Hospital Visit again
Well folks, wanted to have some great news after the photos sorry for that but thought it may help. Well a weekend spent in the garden .... well Saturday any way for my very artistic creative friends to be proud of me ... making cards with my youngest. Well she thinks its better than what Mummy really wants her to do.
The last bit of my creative journey nearly finished... what next.... cooking as well have to make 2 lemon meringue pies , because I love it when its warm and comes out of the oven and Jerry hates the mess likes cold clean peices...... OCD as usual.
So hospital visit.... just to let you know before I say it I am going to be fine but as usual things are not as clear cut... they have found something on my liver... they will keep it monitored.They are going to send me to a Gyn to sort things out on that side...
They do not want to do any more CT scans until Nov as had a lot ... blood to test kidney liver function and B12 ..
So now I need to take things in hand with a diet , and look what I can do...
Now also I am organising Sydneys 8th Birthday now for 12 girls ( instead of the whole class) that makes it a little easier. Science activities and decorations and food any other ideas on top please let me know. (NOT SURE I CAN COPE ) but I am sure I will.
I will let you know the plan and keep you up dated... also we have now booked a well earned holiday on a cruiseship... not sure where the money will come from but we will manage and great time for 3 of us will miss the eldest but she has hers before ours.
Now made some pumpkin butter this weekend also helped someone with baking recipes hope it helped..
I am a live and have lots to be greatful for cannot wait for a friend well family to come from the USA she will get me sorted...
I am greatful to all my friends even those we have not seen that much of ech other but Ithink and pray for you all everyday.
Thank you for your support... keep reading and help and guide me to my next step.. Where should the blog go
love you all xxx
The last bit of my creative journey nearly finished... what next.... cooking as well have to make 2 lemon meringue pies , because I love it when its warm and comes out of the oven and Jerry hates the mess likes cold clean peices...... OCD as usual.
So hospital visit.... just to let you know before I say it I am going to be fine but as usual things are not as clear cut... they have found something on my liver... they will keep it monitored.They are going to send me to a Gyn to sort things out on that side...
They do not want to do any more CT scans until Nov as had a lot ... blood to test kidney liver function and B12 ..
So now I need to take things in hand with a diet , and look what I can do...
Now also I am organising Sydneys 8th Birthday now for 12 girls ( instead of the whole class) that makes it a little easier. Science activities and decorations and food any other ideas on top please let me know. (NOT SURE I CAN COPE ) but I am sure I will.
I will let you know the plan and keep you up dated... also we have now booked a well earned holiday on a cruiseship... not sure where the money will come from but we will manage and great time for 3 of us will miss the eldest but she has hers before ours.
Now made some pumpkin butter this weekend also helped someone with baking recipes hope it helped..
I am a live and have lots to be greatful for cannot wait for a friend well family to come from the USA she will get me sorted...
I am greatful to all my friends even those we have not seen that much of ech other but Ithink and pray for you all everyday.
Thank you for your support... keep reading and help and guide me to my next step.. Where should the blog go
love you all xxx
Monday, 30 May 2011
A look back
I know you are not supposed to look back but I thought a couple of picture of me in hospital may be interesting Top one is in ICU after 12 hours op and the bottom one is in HDD the day after progress quick and fast.
This is to confrm how far I have come. Over the next few weeks I am going to take control of my diet and I will keep you in formed I will start to post more photos now I know how to also am going to treat my self to a better camera. As ours I can not get close enough to the details. Love to you all
Friday, 27 May 2011
Inspirations
I would like to start my blog and promise it will start to get more interesting. I would like to take about a few moments as my life change and the work I have enjoyed over the last few years with creative partnerships comes to the end .
I have met many people , I would also like to take the time to say things and over the next few blogs I am going say things to people.
As I wrote on my facebook today Why do people only say nice and the good things you have done for them when you are dead tell someone today before tomorrow may be too late....
Ok this is not for you to say things to me it is for us all to go out to the world and tell the people around use.
I am going to start with someone who at this moment in her life who has lost a great friend ... My mentor Cath Ford who I secretly look up to as I want to be able to always have the write words as she has and who gave the faith that I could do this. I have missed our chats and time and hope that get to spend more time with her and seep some of her knowledge and fun...
Now Cath I hope you do not mind me using you but a day does not go by when I do not think of you and even more so at this particular time.
Well also in this blog I have to say over the last few week I have wondered why am I still here when many are taken away from use. I feel that I still have a job to do .... I hope this sounds right to people... I was told by some one that like is a train journey and we all get on the train and some of use have to get off ... before our journey is over.
I know this sounds heavy but chat to me and you know that it is not deep thought but an explanation I give.
I am still her for a reason and I have to use mt time wise as I do not know how long I have....life is hard and for some people harder but like creativity and education life is for learning and reflection and evaluating.
People come in to our lifes for a reason and people pass use buy. Please take note of the people you meet on the jouney and treat them well and treat them wisely.
Thank you for staying tuned
For more thought love to all my friends and family far and wide
I have met many people , I would also like to take the time to say things and over the next few blogs I am going say things to people.
As I wrote on my facebook today Why do people only say nice and the good things you have done for them when you are dead tell someone today before tomorrow may be too late....
Ok this is not for you to say things to me it is for us all to go out to the world and tell the people around use.
I am going to start with someone who at this moment in her life who has lost a great friend ... My mentor Cath Ford who I secretly look up to as I want to be able to always have the write words as she has and who gave the faith that I could do this. I have missed our chats and time and hope that get to spend more time with her and seep some of her knowledge and fun...
Now Cath I hope you do not mind me using you but a day does not go by when I do not think of you and even more so at this particular time.
Well also in this blog I have to say over the last few week I have wondered why am I still here when many are taken away from use. I feel that I still have a job to do .... I hope this sounds right to people... I was told by some one that like is a train journey and we all get on the train and some of use have to get off ... before our journey is over.
I know this sounds heavy but chat to me and you know that it is not deep thought but an explanation I give.
I am still her for a reason and I have to use mt time wise as I do not know how long I have....life is hard and for some people harder but like creativity and education life is for learning and reflection and evaluating.
People come in to our lifes for a reason and people pass use buy. Please take note of the people you meet on the jouney and treat them well and treat them wisely.
Thank you for staying tuned
For more thought love to all my friends and family far and wide
Monday, 23 May 2011
ok what now
So what now I here you cry... we things are going ok. Had last CT scan nothing new found so good news for that. But why do I feel so crap well do not know but . I will be fine.
Well some funny news Sydney came to me the other day while I was in the bath and said whats that called... (pointing to my stoma bag) to which I replied bertie she laughed and said no the so stoma.. urostomy.. so the conversation continued to the renounding naming of the stoma SAMMY and Bertie the urosomy bag so now I am please you have met them lets have some fun..
Well the thing with the stoma it is like having a alien coming out of you stomach... it moves like a worm..( that the peristoltic motion) so this pink alien . That is attached to me.
So what else not alot else still unable to a lot of activity some days am unable to walk the joints are so bad no good for a dancer. Falling a sleep when I sit and stop for any time oh what great company I am.
This is now coming up to nearly 12 months since all this started what a year .. I am positive and at present I am still here so thats a bonus.
Also My eldest daughter had done her 1st year at uni and will be home next week for the summer.
What I am up to scrapebooking , cooking which is great fun... cooked cheese cake made last week as well as cupcakes.. also made Aoili .. tried Sat night to no success but did again on sunday and what a great acheivement.
So I think I will be adding things and picture of what I am making and cooking.
Also for everyone out there a little thought provoking info from a book I am reading.
I feel I am becoming wise and some thing that I feel people need to understand about cancer... for themselves and the people who have go it.
You are unable to treat cancer as a disease that you can"cure" and then forget about it. . Cancer does not just apear fromanother planet. Cancer is a result of a natural process.
So even though I do not have physical signs of my cancer at present I am still not cured.. this is not saying I am going to die tomorrow or it will return but for some reason I turned my cancer on. The other interesting fact I have found that usually when people find they they are diagnosed with cancer ... it will be come more aggressive they say its the stress that feeds it. Well I am not sure everything is the right answer and you have do do what you can do.
One of the biggest problems when you are first diagnosed is that you enter the amusement park and thinks seem to be out of your control with out the time to reflect and make proper informed decissions. Now I am taking control....
Thanks for your continued support. Please keep in touch its nice to here from you x
Well some funny news Sydney came to me the other day while I was in the bath and said whats that called... (pointing to my stoma bag) to which I replied bertie she laughed and said no the so stoma.. urostomy.. so the conversation continued to the renounding naming of the stoma SAMMY and Bertie the urosomy bag so now I am please you have met them lets have some fun..
Well the thing with the stoma it is like having a alien coming out of you stomach... it moves like a worm..( that the peristoltic motion) so this pink alien . That is attached to me.
So what else not alot else still unable to a lot of activity some days am unable to walk the joints are so bad no good for a dancer. Falling a sleep when I sit and stop for any time oh what great company I am.
This is now coming up to nearly 12 months since all this started what a year .. I am positive and at present I am still here so thats a bonus.
Also My eldest daughter had done her 1st year at uni and will be home next week for the summer.
What I am up to scrapebooking , cooking which is great fun... cooked cheese cake made last week as well as cupcakes.. also made Aoili .. tried Sat night to no success but did again on sunday and what a great acheivement.
So I think I will be adding things and picture of what I am making and cooking.
Also for everyone out there a little thought provoking info from a book I am reading.
I feel I am becoming wise and some thing that I feel people need to understand about cancer... for themselves and the people who have go it.
You are unable to treat cancer as a disease that you can"cure" and then forget about it. . Cancer does not just apear fromanother planet. Cancer is a result of a natural process.
So even though I do not have physical signs of my cancer at present I am still not cured.. this is not saying I am going to die tomorrow or it will return but for some reason I turned my cancer on. The other interesting fact I have found that usually when people find they they are diagnosed with cancer ... it will be come more aggressive they say its the stress that feeds it. Well I am not sure everything is the right answer and you have do do what you can do.
One of the biggest problems when you are first diagnosed is that you enter the amusement park and thinks seem to be out of your control with out the time to reflect and make proper informed decissions. Now I am taking control....
Thanks for your continued support. Please keep in touch its nice to here from you x
Wednesday, 18 May 2011
Another CT scan
Hi folks only me again. Well it has been a bit of a funny few week funerals and one thing and another. Tomorrow I am off for another CT scan fingers croassed.
I just wish I could tell everyone that this is all over but its not .... and I do not know what is going to happen next. I am trying to do as much as I can but things are difficult I get tired easily.
Had scan , just waiting for the results now and what is going to happen next. I am trying to rebuild my life and decide where it goes.
Life is different .
Had a busy week last week with a CP get together and a funeral for a wonderful man that believed in the future.
I need to think about getting fitter and what I want and can do.
Mum and Dad back from there break to day they will be well rested.
If I am fine why do I not feel right ... what next
sorry rambling to day a bit in my head at the minute need to get together with people and lets have fun love to my friends and family I love you all ... you are all very important to me.. If you need me you know where I am.
Where shall my blog take us now
Love to you all xx
I just wish I could tell everyone that this is all over but its not .... and I do not know what is going to happen next. I am trying to do as much as I can but things are difficult I get tired easily.
Had scan , just waiting for the results now and what is going to happen next. I am trying to rebuild my life and decide where it goes.
Life is different .
Had a busy week last week with a CP get together and a funeral for a wonderful man that believed in the future.
I need to think about getting fitter and what I want and can do.
Mum and Dad back from there break to day they will be well rested.
If I am fine why do I not feel right ... what next
sorry rambling to day a bit in my head at the minute need to get together with people and lets have fun love to my friends and family I love you all ... you are all very important to me.. If you need me you know where I am.
Where shall my blog take us now
Love to you all xx
Wednesday, 11 May 2011
another day is hear
Well it has been a couple of weeks since I last wrote... Well busy times with Easter and then the wedding not mine THE WEDDING lots of times and lots of fun. This really tires me out. I am afraid I am very good at the front.
Doing well as can be expected look fantastic.Tan from the nice weather... down side is put lots of weight back on think a lot of water retention ... going through the menopause so quickly is not helping.. bones ache..
I keep forgetting that it was only November I had the op... road to recovery is rocky but I am sure I will get there in the end.
Another CT scan next week , there goes another day of my life.
Still have discharge gross .. cannot wait to get it sorted. Joint pains ... feel absolutly exhausted and feeling off colour not sure why.
Well it has been also a sad month for the loss of a great man who I had the oppertunity to work with . Unfortunatley when people die around me at present it brings on very unusual feelings... my thoughts to family and friends. Also the young girl I spoke of in my last blog is also at peace.
Well had the chance to meet up with collegues and friends this week that I have not seen in a while, that was good.
Also thinking of writing a bucket list ... not sure where to start what do I want to do before I die .. not that I am going any where yet just incase any of you have any thoughts on a good knees upand any way you are not having one with out me.
I am looking for some inspiring ideas... just to give me some inpiration.
Well I could start at the end and work back sounds like fun .. I know for some this is all a bit much and think I am being morbid .... but I can assure you all I am very positive.... tired and fed up of everything but positive.
I did have the idea of selling everything and buying a motor home and travelling the real world ( but Jerry said I need to join it )
He also thinks that I need a job not that I am fit to do one just that I think he thinks I am not sure 9 sorry ramblin)
Well youngest has started fencing at the club doing really well.... she keeps saying Mummy I do not want you to die...... tough one that... keep smiling.
Need a holiday for family time where to go what to do..... Jerry away all the time is hard.... Everything for him has gone back to normal not even mid week visits home work is busy...
Well we are fine just tough as when we try to talk he changes the subject his way of dealing .. we will get there as I say he want everything to be rosey so if he keeps it that way it will be fine. sorry for the mone . Fed up of long night on my own .... official mone over with..
Ok well I think I need to get some sleep... see you all very soon love to you all god bless xxx
Doing well as can be expected look fantastic.Tan from the nice weather... down side is put lots of weight back on think a lot of water retention ... going through the menopause so quickly is not helping.. bones ache..
I keep forgetting that it was only November I had the op... road to recovery is rocky but I am sure I will get there in the end.
Another CT scan next week , there goes another day of my life.
Still have discharge gross .. cannot wait to get it sorted. Joint pains ... feel absolutly exhausted and feeling off colour not sure why.
Well it has been also a sad month for the loss of a great man who I had the oppertunity to work with . Unfortunatley when people die around me at present it brings on very unusual feelings... my thoughts to family and friends. Also the young girl I spoke of in my last blog is also at peace.
Well had the chance to meet up with collegues and friends this week that I have not seen in a while, that was good.
Also thinking of writing a bucket list ... not sure where to start what do I want to do before I die .. not that I am going any where yet just incase any of you have any thoughts on a good knees upand any way you are not having one with out me.
I am looking for some inspiring ideas... just to give me some inpiration.
Well I could start at the end and work back sounds like fun .. I know for some this is all a bit much and think I am being morbid .... but I can assure you all I am very positive.... tired and fed up of everything but positive.
I did have the idea of selling everything and buying a motor home and travelling the real world ( but Jerry said I need to join it )
He also thinks that I need a job not that I am fit to do one just that I think he thinks I am not sure 9 sorry ramblin)
Well youngest has started fencing at the club doing really well.... she keeps saying Mummy I do not want you to die...... tough one that... keep smiling.
Need a holiday for family time where to go what to do..... Jerry away all the time is hard.... Everything for him has gone back to normal not even mid week visits home work is busy...
Well we are fine just tough as when we try to talk he changes the subject his way of dealing .. we will get there as I say he want everything to be rosey so if he keeps it that way it will be fine. sorry for the mone . Fed up of long night on my own .... official mone over with..
Ok well I think I need to get some sleep... see you all very soon love to you all god bless xxx
Thursday, 28 April 2011
Prayers and thoughts for other people and there losses
Well gang I am here and getting in to the full swing of things . I have something to post that I hope the person that has sent it to me doesn't mind.
Cancer is something that is terrible even if it does not give you the early death sentence from diagnosis it is with you day today with the constant waiting game.
I am doing quite well in my self and as I say I look ok. I have put a lot of weight on in a short period of time ( and its not from eating all the cupcakes) I do not eat them.
I think it is the wine that I am drinking so after this weekend its going to be a detox and no wine for a while well will see how I go.
I had a lovely weekend with a friend the other week relaxing and an opportunity to do some Qigong and Chi Balls, and palites.
Cancer has effected me in more than one way and the people around me, I have lost friends and family to this disease over the years and my daughter recently lost a Friend just after the girls19th Birthday, and another persons mother lost her battle yesterday . My thoughts are with these people and my prayers .
My friends and Family across the pond are dealing with this also and I would like to add the bit from this mothers plight that gives you an in site into the thought of families and decisions that have to be made.
Cancer is something that is terrible even if it does not give you the early death sentence from diagnosis it is with you day today with the constant waiting game.
I am doing quite well in my self and as I say I look ok. I have put a lot of weight on in a short period of time ( and its not from eating all the cupcakes) I do not eat them.
I think it is the wine that I am drinking so after this weekend its going to be a detox and no wine for a while well will see how I go.
I had a lovely weekend with a friend the other week relaxing and an opportunity to do some Qigong and Chi Balls, and palites.
Cancer has effected me in more than one way and the people around me, I have lost friends and family to this disease over the years and my daughter recently lost a Friend just after the girls19th Birthday, and another persons mother lost her battle yesterday . My thoughts are with these people and my prayers .
My friends and Family across the pond are dealing with this also and I would like to add the bit from this mothers plight that gives you an in site into the thought of families and decisions that have to be made.
A very hard update.
It's with a very sad and heavy heart that we must inform all of you that Rylie's time is near it's end. After consulting with her Dr team today with the recent progressions of the tumors and not responding at all to the chemotherapy we have decided that the best thing left for Rylie to for us to be a family and enjoy our last few days together in the hospital. We have decided not to move forward with chemotherapy and have asked that we just keep Rylie as comfortable as she can be for the remaining time that we have. Tonight we have had to have the conversation with Hailee and Makayla about what is happening to Rylie and what is going to happen over the next few days. To tell you that is the toughest conversation that I will ever have in my life is purely an understatement. We have tried to explain to our girls and they have responded and are still asking us a lot of questions about what is going to happen to Rylie.
Today is the first day since all of this started that Karen or I have ever felt like it was unfair. As we go thru the next few days with Rylie we are seeing many of Rylie's different medical team come through to say their own goodbyes to her. To see all the people come thru just shows me how vested they all were in taking care of Rylie. Thank you all for love prayers and support thru these impossible times.
Today is the first day since all of this started that Karen or I have ever felt like it was unfair. As we go thru the next few days with Rylie we are seeing many of Rylie's different medical team come through to say their own goodbyes to her. To see all the people come thru just shows me how vested they all were in taking care of Rylie. Thank you all for love prayers and support thru these impossible times.
Come on, Rock it Rylie!
I'm asking if all of you can take a few minutes to say a prayer for Rylie and her family. I can not imagine what they're feeling. I just think that the more prayers and hugs they can get, the easier Rylie's journey will be. I hope you do not mind Linda and that is not too painful every one but it really touched me.
I think for this a prayer from us all to to think about everyone in the world that has gone through the loss and the strength that we get from peoples supports is always fantastic and I know this is hard for all people . Bless you all I will be back soon xx
Tuesday, 26 April 2011
Living with Cancer: Me again
Living with Cancer: Me again: "Well where was I up to.... Move from CCU up to the step down unit (HDD) Most of the time here was spent sleeping. This will be a quick synop..."
Me again
Well where was I up to.... Move from CCU up to the step down unit (HDD) Most of the time here was spent sleeping. This will be a quick synopsis as well I should have done it as I went along and now what to blog but not sure my life is exciting and not sure people want to read it.
Was made to get up every day with the physio ,
day 1 post op Physio got me out of bed .... gastric tube and drips and things... made to walk to the centre of the room the worst thing was the retching as unable to be sick as nothing there so they draw the stomach acid out to help..
day 2.... Sorry days just blurry in to one so these may not be quite accurate.
Well I know been writing this for ages and finding it hard to get what people want and whether they are really interested in me.
We please ask questions it will get me inspired to write.
Well life has been up and down since I last wrote. I have had my ups and downs. Life is different and I try to keep things as normals as I can . I find it very hard and because I look so well people have for gotten.... well I am not sure that is quite true but .... thats me
.. Well got in to cupcakes and making relishes and preserves jams and marmalades . I am tending to do to much and get very tired.
Had a scan resently and they have found thinckening in my tubes .... so another ct soon to check on it. I seem to have a problem with excessive healing... I had an op in March to remove excessive growths in the vagina after that they sould not have come back but they have. So discharge from hell sorry for the grossness.
Well Summer is coming and it make the world seem better I AM KEEPING UP THE FIGHT . I am still here and I am keeping going
Love to you all and I am going to try each day to write something please interact with me miss the interaction of people.
Take care and live life have fun xxx
Was made to get up every day with the physio ,
day 1 post op Physio got me out of bed .... gastric tube and drips and things... made to walk to the centre of the room the worst thing was the retching as unable to be sick as nothing there so they draw the stomach acid out to help..
day 2.... Sorry days just blurry in to one so these may not be quite accurate.
Well I know been writing this for ages and finding it hard to get what people want and whether they are really interested in me.
We please ask questions it will get me inspired to write.
Well life has been up and down since I last wrote. I have had my ups and downs. Life is different and I try to keep things as normals as I can . I find it very hard and because I look so well people have for gotten.... well I am not sure that is quite true but .... thats me
.. Well got in to cupcakes and making relishes and preserves jams and marmalades . I am tending to do to much and get very tired.
Had a scan resently and they have found thinckening in my tubes .... so another ct soon to check on it. I seem to have a problem with excessive healing... I had an op in March to remove excessive growths in the vagina after that they sould not have come back but they have. So discharge from hell sorry for the grossness.
Well Summer is coming and it make the world seem better I AM KEEPING UP THE FIGHT . I am still here and I am keeping going
Love to you all and I am going to try each day to write something please interact with me miss the interaction of people.
Take care and live life have fun xxx
Tuesday, 18 January 2011
Right
Ok so spent the Thursday night in CCU , with snoring people around me.. the emidural was fab could not feel any pain.. but also could not feel my legs was fun. Mum and Jerry came to see me the night was high and happy ... on the morphine ...
Next morning visit from consultant and tribe about 10 people oh how popular am I .... they said they were really pleased with me and they we sending me to step down sounds like a dance step. A friend came in to see me and could not believe how well I looked... she also said that on Thursday afternoon at school some of the girls wanted to know if dance was on and if Mrs Cheetham would be in .. she said I was preoccupied I bet well should have explained to the surgeon I had a dance class to do.
Tubes in my neck, drains in my side, tubes in my arm and enough bandages where they had used me as a pin cushion... the anesthetist called to see me and asked how her favourite patient was doing. I bet she says that to everyone or it could have been my comedy act in recovery.
The other funny thing that happened was not fun on the persons behalf but from my point of view it was. Mum phoned my Uncle at work he was busy so left a message Natalie doing fine she is in CCU and you can visit.... got translated by the receptionist to your niece is in CCU and you need to go quick... you can imagine his surprise and mine as he dashes in and I am trying to explain he needs to take his jacket of ... and the relief on his face when I am conscious.
Tubes down my throat of what a weird sessation... and the delight full new abendage my bag ( not named as yet)
Ok well enough for to night sleep is terrible at the minute and upside down also some god dam terrible dream sorry for blast feming any way must try and get some sleep.... I will continue with my journey and my excirting life and adventures I am having (not... but enjoy)
Thanks and keep reading xx
Next morning visit from consultant and tribe about 10 people oh how popular am I .... they said they were really pleased with me and they we sending me to step down sounds like a dance step. A friend came in to see me and could not believe how well I looked... she also said that on Thursday afternoon at school some of the girls wanted to know if dance was on and if Mrs Cheetham would be in .. she said I was preoccupied I bet well should have explained to the surgeon I had a dance class to do.
Tubes in my neck, drains in my side, tubes in my arm and enough bandages where they had used me as a pin cushion... the anesthetist called to see me and asked how her favourite patient was doing. I bet she says that to everyone or it could have been my comedy act in recovery.
The other funny thing that happened was not fun on the persons behalf but from my point of view it was. Mum phoned my Uncle at work he was busy so left a message Natalie doing fine she is in CCU and you can visit.... got translated by the receptionist to your niece is in CCU and you need to go quick... you can imagine his surprise and mine as he dashes in and I am trying to explain he needs to take his jacket of ... and the relief on his face when I am conscious.
Tubes down my throat of what a weird sessation... and the delight full new abendage my bag ( not named as yet)
Ok well enough for to night sleep is terrible at the minute and upside down also some god dam terrible dream sorry for blast feming any way must try and get some sleep.... I will continue with my journey and my excirting life and adventures I am having (not... but enjoy)
Thanks and keep reading xx
Monday, 17 January 2011
OK OK
Right OK I know no blog since before the op but for of you out there wondering I am still alive... It has just been difficult.. the simplest things take for ever I able to discus things but when I shut down to write them like finishing reports and that I can not do it.
Life is difficult and strange at the minute. Post op wise on the road to recovery.... Cancer wise as good as it gets at present so where do I begin well for those of you interested I suppose I should start post op.
Well 12 hours in the theatre ... not that I knew it...woke up in recovery thinking I had the biggest hands going as though I had those massive gloves you see at American football games... also felt like I had the biggest pair of rubber knickers a bit like the trousers that ice hockey player wear.... Then lying there talking to the nurses and anesthetist .. next the surgeon came out and I could here him trying to talk to someone else then I said I am over here..... He had gone in to the wrong area .. in charge as usual .... So about 10 o'clock at night I am wheeled out of the recovery room to see Mum and Jerry gowning up to come into CCU... and all I went on about was that they had broken my foot.. of course it was not broken just pressure sore .......ok I am going to go for a bath and will write some more later .
Thanks again for the silent support I hope you enjoy a snippet of my life . I will bring you upto date very quickly with the ups and down and perhaps what my future holds ... Love you all xxx
Life is difficult and strange at the minute. Post op wise on the road to recovery.... Cancer wise as good as it gets at present so where do I begin well for those of you interested I suppose I should start post op.
Well 12 hours in the theatre ... not that I knew it...woke up in recovery thinking I had the biggest hands going as though I had those massive gloves you see at American football games... also felt like I had the biggest pair of rubber knickers a bit like the trousers that ice hockey player wear.... Then lying there talking to the nurses and anesthetist .. next the surgeon came out and I could here him trying to talk to someone else then I said I am over here..... He had gone in to the wrong area .. in charge as usual .... So about 10 o'clock at night I am wheeled out of the recovery room to see Mum and Jerry gowning up to come into CCU... and all I went on about was that they had broken my foot.. of course it was not broken just pressure sore .......ok I am going to go for a bath and will write some more later .
Thanks again for the silent support I hope you enjoy a snippet of my life . I will bring you upto date very quickly with the ups and down and perhaps what my future holds ... Love you all xxx
Wednesday, 3 November 2010
3rd Nov 12:00
Well still waiting to sign form , but have had a great creative chat with an ex teacher, while she was giving me a foot massage. Just to let you know she woke Jerry up out of the comfy chair, chance would be good if yoou could fall a sleep like he does.
Was writing letters last night and he thinks I am writing because I think I am going to die , no such luck he cannot pay the mortgage off yet or run of with the blonde to some hot country.
Sorry causing mischief as usual but it is keeping me entertained. no fit doctors come to see me yet , need to know if I can order food. Light food that's all. Not good when you are a veggie and they offer you meat soup.
So toast it is not that it is going to stay in their long after the medication. Waiting for stoma nurse to mark me up a long waiting day so more blocks should keep you and me entertained please comment so I can reply and have some fun.
Thanks to you all
Was writing letters last night and he thinks I am writing because I think I am going to die , no such luck he cannot pay the mortgage off yet or run of with the blonde to some hot country.
Sorry causing mischief as usual but it is keeping me entertained. no fit doctors come to see me yet , need to know if I can order food. Light food that's all. Not good when you are a veggie and they offer you meat soup.
So toast it is not that it is going to stay in their long after the medication. Waiting for stoma nurse to mark me up a long waiting day so more blocks should keep you and me entertained please comment so I can reply and have some fun.
Thanks to you all
Day before op 3rd Nov 10:30am
Well a busy few days, pre op assesment on Thursday what a long day that was I am sure they could organise it better but never mind what else do I have to do in my life hey.
Well fun weekend with family and friends and thank you to all the people that have been their for me over the past few months and for the continued support.
Wednesday 3rd November - Day before the operation, got most of my life paper work done some more things will be done to day now it is just the waiting game and preparation for tomorrow.
How am I feeling very scared had operations before I really feel I am stepping in to the unknown, this is the last part ... well sort of recovery will be a long long road with many a winding turn ... sorry for the song.
Up beat to the last and always. I will continue to post as much as I can through out today and then when I am up to it afterwards.
Great night last night with friends I never knew how many people I had touched and how well liked I was its either that or they are just trying to make sure that if I go they get something well news is not going yet and the only thing I have got is debt...lol ( please do not take this the wrong way anyone this is just my sense of humour).
Well I am here at the hospital oh what a boring starving day this is going to be..
Love to you all for now ..
Well fun weekend with family and friends and thank you to all the people that have been their for me over the past few months and for the continued support.
Wednesday 3rd November - Day before the operation, got most of my life paper work done some more things will be done to day now it is just the waiting game and preparation for tomorrow.
How am I feeling very scared had operations before I really feel I am stepping in to the unknown, this is the last part ... well sort of recovery will be a long long road with many a winding turn ... sorry for the song.
Up beat to the last and always. I will continue to post as much as I can through out today and then when I am up to it afterwards.
Great night last night with friends I never knew how many people I had touched and how well liked I was its either that or they are just trying to make sure that if I go they get something well news is not going yet and the only thing I have got is debt...lol ( please do not take this the wrong way anyone this is just my sense of humour).
Well I am here at the hospital oh what a boring starving day this is going to be..
Love to you all for now ..
Thursday, 28 October 2010
10, 9, 8 days and counting
OK well only 10 days till the operation , well here we go. Pre op assessment today why these things take so long but if the organised them selves they could be quicker.
Monday went to see the consultant.. final decision the bag not the neo... all is well tumour starting to grow again so glad that its not long before it come out.. the bladder that is. How we know growth of tumour... this sounds discussting but just some info to keep you going until I can tell you all about the operation.
Urine dark red blood colour very nice well not really and the calcium deposits are back so that's a clear sign that is growing but seeing as did not have all these symptoms to start with its Ironinc I am having them now.
Care package in place for when I come out so Mum and Dad do not have to take all the strain.
Tuesday not sure what happened on that day obviouly not exciting mainly slept, did a movie afternoon with the youngest well it is halfterm. Wednesday another day of trying to complete things and finish CP stuff I am finding it so hard words are not flowing some devine intervention needed. New Bed settee for the spare bedroom so when required Mum and Dad can stay in comfort at least.
Thursday ... Hospital from 1pm till 5pm oh what an exciting life I lead. I am off out for a meal with the girls tonight and looking forward to it..
Well keep reading and please write back love to you all and for all the positive thoughts. I am also writing letters and notes to people request and hopes and things.
Love and Best wishes from the continual up beat fighter xxx
Monday went to see the consultant.. final decision the bag not the neo... all is well tumour starting to grow again so glad that its not long before it come out.. the bladder that is. How we know growth of tumour... this sounds discussting but just some info to keep you going until I can tell you all about the operation.
Urine dark red blood colour very nice well not really and the calcium deposits are back so that's a clear sign that is growing but seeing as did not have all these symptoms to start with its Ironinc I am having them now.
Care package in place for when I come out so Mum and Dad do not have to take all the strain.
Tuesday not sure what happened on that day obviouly not exciting mainly slept, did a movie afternoon with the youngest well it is halfterm. Wednesday another day of trying to complete things and finish CP stuff I am finding it so hard words are not flowing some devine intervention needed. New Bed settee for the spare bedroom so when required Mum and Dad can stay in comfort at least.
Thursday ... Hospital from 1pm till 5pm oh what an exciting life I lead. I am off out for a meal with the girls tonight and looking forward to it..
Well keep reading and please write back love to you all and for all the positive thoughts. I am also writing letters and notes to people request and hopes and things.
Love and Best wishes from the continual up beat fighter xxx
Monday, 25 October 2010
Well what next
Well I am still alive sorry not updated the blog for a while , been busy and been in hospital so oh what fun.
I am doing really well at the moment.. still trying to build my strength up. Been on a trip away and birthdays.
I have a date for the operation so on a count down to that still not made a decision on whether stoma or neo bladder . I am very nervous and scared about the operation , I do not have a choice if I want a better chance of survival. Well life changing decissions.... I have had a few break downs recently with emotions as lots going on with what to do.
Edlest daughter is doing well at uni so one less thing to worry about. Sydney is growing up and becoming a star. Well I know its early but starting to think about Christmas and prearing things I can before the op... I am sure as usual my Mum will be a star and pick up the rains.
I had a dance teacher but I think she got a better offer ... I just wish people will be honest with me so that I can orgaise things but never mind hopefully will get it sorted.
I am also having to look at the business ... as know one to run it so will have to close it all down just sad after all the work I have done so if any one wants to buy any business stuff let me know.
I have sorted out the people to help in the house in looking after me and Sydney so thats really good. I will promise to write everyday upto the op and then there will be a break and it will start when I am contious after the op.
Today off to see the consultant and sometime this week will be having pre op assesment... So tyding things up and writing letters before I go in.
Keep reading will be back soon
I am doing really well at the moment.. still trying to build my strength up. Been on a trip away and birthdays.
I have a date for the operation so on a count down to that still not made a decision on whether stoma or neo bladder . I am very nervous and scared about the operation , I do not have a choice if I want a better chance of survival. Well life changing decissions.... I have had a few break downs recently with emotions as lots going on with what to do.
Edlest daughter is doing well at uni so one less thing to worry about. Sydney is growing up and becoming a star. Well I know its early but starting to think about Christmas and prearing things I can before the op... I am sure as usual my Mum will be a star and pick up the rains.
I had a dance teacher but I think she got a better offer ... I just wish people will be honest with me so that I can orgaise things but never mind hopefully will get it sorted.
I am also having to look at the business ... as know one to run it so will have to close it all down just sad after all the work I have done so if any one wants to buy any business stuff let me know.
I have sorted out the people to help in the house in looking after me and Sydney so thats really good. I will promise to write everyday upto the op and then there will be a break and it will start when I am contious after the op.
Today off to see the consultant and sometime this week will be having pre op assesment... So tyding things up and writing letters before I go in.
Keep reading will be back soon
Tuesday, 21 September 2010
after last 16 hour chemo
Felling OK today just tired as lack of sleep and the incredible toilet trip keep you on a continuous treadmill. Well yesterdays event cannula went in well yesterday so things went very well. I was planning to finish and close my report file for last year but it did not happen HELP ..... One thing I am not coping very well with is that things I was able to do easily now take me forever. A little celebration and cake at the hospital for Dani's 19th Birthday . Sydney is being a star at school and a comic as usual. The lady that does the tea/coffee and meals popped in the room while I was in with the Doctor and Jerry and said was it OK if she gave my niece some Jelly well , she said it was because I looked so young not convinced but better than being her grandmother. The Doctor said I wonder how she would look and feel after all the chemo.
It was great to see some friends this week brilliant , really made my day.......went to friends for dinner on Saturday another great evening. You really begin to know who your friends are and who cares and I now I have a lot of those.
Well last chemo today then heads up for op. I am hoping to show my face at the CA day tomorrow if well enough just whether I drive or what to do. Preparations for Dani and uni all completed she goes this Saturday I will miss her and not sure how to manage but in my true fashion I will.
My brain and body feels absolutely fuddled, but as chemo kills cells its to be expected. I am just finding it hard to even read a book.....but I am sure it will all improve and things are moving in the right direction.
Thats all for now thak you for reading and please continue xxx Natalie
It was great to see some friends this week brilliant , really made my day.......went to friends for dinner on Saturday another great evening. You really begin to know who your friends are and who cares and I now I have a lot of those.
Well last chemo today then heads up for op. I am hoping to show my face at the CA day tomorrow if well enough just whether I drive or what to do. Preparations for Dani and uni all completed she goes this Saturday I will miss her and not sure how to manage but in my true fashion I will.
My brain and body feels absolutely fuddled, but as chemo kills cells its to be expected. I am just finding it hard to even read a book.....but I am sure it will all improve and things are moving in the right direction.
Thats all for now thak you for reading and please continue xxx Natalie
Tuesday, 14 September 2010
OK
OK gang just not been very chipper lately and the slightest thing is taking me for ever. I have some good news well as good as it get at the minute. Well saw the consultant last week and as far as they can see at present they cannot see any tumors any where else so very good news. Also no more tumor growth in the bladder. This means one more round of chemo.... oh what fun.... so op in about 8 weeks.
Well life has not been that brilliant just hard work lost of visits from people trying to sort out the care package for after the op as hopefully will be back to normal by spring if not before if I have my way.
Well cannot stand the fact that I cannot even concentrate on the easiest things. I still have reports to finish and just want to complete them but finding it so hard to do.
Sydney started trampolining lessons this week arrived with her and Jerry on Sunday me not particularly on top form .. but Jerry and I thought we could go and have a little sit down and a coffee for an hour but no such chance .. the young girl said because she was not 8 we had to stay well I was not well enough for that and what are we paying for...... So in the end after a complaint....I went and sat in the car until she had finished, this is no fun as I have no extra energy and feel like crap .
If I am up and about just a little while I need my bed... its just so hard I never thought I would be this ill.
Well folks a little update will promise to do it more regularly this week if I can stay awake long enough. Well off to the hospital in about an hour for another 16 hour on slaught of chemo. One thing I am really hating is the fact I am finding it hard to plan anything as I never know how I am going to feel
Well must dash will try and continue later in the hospital...need pack case and make sure I have everything
Thank you everyone for there continued support. I promise Curious Minds I will complete mt contract this week I hope I am sooooooooooooo fed up want to get rid of this off my head but difficult.
Well god bless everyone for the thoughts and prays love to you all Natalie xxx
Well life has not been that brilliant just hard work lost of visits from people trying to sort out the care package for after the op as hopefully will be back to normal by spring if not before if I have my way.
Well cannot stand the fact that I cannot even concentrate on the easiest things. I still have reports to finish and just want to complete them but finding it so hard to do.
Sydney started trampolining lessons this week arrived with her and Jerry on Sunday me not particularly on top form .. but Jerry and I thought we could go and have a little sit down and a coffee for an hour but no such chance .. the young girl said because she was not 8 we had to stay well I was not well enough for that and what are we paying for...... So in the end after a complaint....I went and sat in the car until she had finished, this is no fun as I have no extra energy and feel like crap .
If I am up and about just a little while I need my bed... its just so hard I never thought I would be this ill.
Well folks a little update will promise to do it more regularly this week if I can stay awake long enough. Well off to the hospital in about an hour for another 16 hour on slaught of chemo. One thing I am really hating is the fact I am finding it hard to plan anything as I never know how I am going to feel
Well must dash will try and continue later in the hospital...need pack case and make sure I have everything
Thank you everyone for there continued support. I promise Curious Minds I will complete mt contract this week I hope I am sooooooooooooo fed up want to get rid of this off my head but difficult.
Well god bless everyone for the thoughts and prays love to you all Natalie xxx
Friday, 3 September 2010
Another Bright day
Well been an up and down week, feeling quite well and then someone keeps taking it away. Well Tuesday another chemo day... not too bad apart from this blooming vein problem arm still really sore.
Saw consultant right had meeting and then chemo , fun as usual with the chemo nurses. One of then is really funny really lifts you up. If I did not feel bad enough Jerry said I had a moon face.
Wednesday had a fantastic meeting with the Macmillan nurse really helping me get things moving... Well as I mentioned before I have these ladies that call in to make sure I am OK and eaten while Jerry is away and help with anything I would like.
Well one night and they keep wanting to send this poor young lad to put me to bed (this is the last call of the day ) when I have a bath so was not keen on this young lad doing that so just a bit awkward I am sure he is perfectly wonderful and if it was food and earlier on the day I am sure it would not concern me so much but when its 9 pm not convinced. I know at any other time I am sure it would be fun but not at the minute.
Well Thursday this week went for a scan , hospital visits seem to be the norm but never quick , had to be there for 8:15 am , went with Mum and her friend drove us as Dad was sorting Sydney.
It was fun as any trip to a hospital was. When you first arrive for the scan they give you a drink aniseed flavour (not enjoyable) mixed with blackcurrant, not fantastic on an already funny tummy.
So took my flask and mum and Kath and we went to the cafe they had latte and cappuccino, I wish I was haing that and not this flipping drink... well only place to sit was on a table with this quite distinguised man in a pinstriped suit, he said it was ok to sit. Well carried on with our conversation and unfortunate for him my occasional wretching not plesent I am sure.... when is friend/college arrived he said that we had entertained him and was better company than his friends.... Also the only way I was getting this down was slowly.. thought I would try a packet of crisps thet cost 50p what a rip off but it did help then back for the scan.....strip off into the gown split to the back , keeping my dignaty. Then in to the room on the table hooked up to the dye that gives you a warm feeling when goes in.
After the excitment of the scan , off to try my wig ..... Sally (the wig ) is brill very natural Thank you NHS for a free bit of dignaty.
Not lost all my hair , but because of the limpness and as Jerry said I lost over half.. A friend of my that saw me last week with hair falling all over the place thought I would be bald this week but not yet.
Sydney back to school normality for her... reports still to finally finish. Rest week apart from a couple of hospital visits so should be better.. also got medication for a throat stomach infection so should stop feeling sick.
Thank again for the great support and comments it makes ,me smile. Just to let you know on the hard stuff now shandy still cannot drink wine. The other thing I am loving at present is fruit.. it sounds like pregnancy cravings.
Had some great conversations this week with friends and family and thanks for them for listening and talking to me.
Love to all that ready keep going and Iwill I will try and upload some hair picture to laugh at plus sally
Love to you all Natalie xxx
Saw consultant right had meeting and then chemo , fun as usual with the chemo nurses. One of then is really funny really lifts you up. If I did not feel bad enough Jerry said I had a moon face.
Wednesday had a fantastic meeting with the Macmillan nurse really helping me get things moving... Well as I mentioned before I have these ladies that call in to make sure I am OK and eaten while Jerry is away and help with anything I would like.
Well one night and they keep wanting to send this poor young lad to put me to bed (this is the last call of the day ) when I have a bath so was not keen on this young lad doing that so just a bit awkward I am sure he is perfectly wonderful and if it was food and earlier on the day I am sure it would not concern me so much but when its 9 pm not convinced. I know at any other time I am sure it would be fun but not at the minute.
Well Thursday this week went for a scan , hospital visits seem to be the norm but never quick , had to be there for 8:15 am , went with Mum and her friend drove us as Dad was sorting Sydney.
It was fun as any trip to a hospital was. When you first arrive for the scan they give you a drink aniseed flavour (not enjoyable) mixed with blackcurrant, not fantastic on an already funny tummy.
So took my flask and mum and Kath and we went to the cafe they had latte and cappuccino, I wish I was haing that and not this flipping drink... well only place to sit was on a table with this quite distinguised man in a pinstriped suit, he said it was ok to sit. Well carried on with our conversation and unfortunate for him my occasional wretching not plesent I am sure.... when is friend/college arrived he said that we had entertained him and was better company than his friends.... Also the only way I was getting this down was slowly.. thought I would try a packet of crisps thet cost 50p what a rip off but it did help then back for the scan.....strip off into the gown split to the back , keeping my dignaty. Then in to the room on the table hooked up to the dye that gives you a warm feeling when goes in.
After the excitment of the scan , off to try my wig ..... Sally (the wig ) is brill very natural Thank you NHS for a free bit of dignaty.
Not lost all my hair , but because of the limpness and as Jerry said I lost over half.. A friend of my that saw me last week with hair falling all over the place thought I would be bald this week but not yet.
Sydney back to school normality for her... reports still to finally finish. Rest week apart from a couple of hospital visits so should be better.. also got medication for a throat stomach infection so should stop feeling sick.
Thank again for the great support and comments it makes ,me smile. Just to let you know on the hard stuff now shandy still cannot drink wine. The other thing I am loving at present is fruit.. it sounds like pregnancy cravings.
Had some great conversations this week with friends and family and thanks for them for listening and talking to me.
Love to all that ready keep going and Iwill I will try and upload some hair picture to laugh at plus sally
Love to you all Natalie xxx
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