Hi everyone, been a few days since I last wrote, just been busy and very tired...doing to much which is no help.. but life goes on.
The inevitable started today my hair was coming out ( not going to loose it all just thin ) my head hurts so much. My rest week this week no chemo.. this is to allow your body to do some recovery.. next week another 16 hour session..
This week has been a good week and the end of last week, but remember not to over do it , feel great then feel like I am going to collapse and need to go to sleep.
Sydney has gone to London with Mum and Dad, even though Mum was worried about leaving me on my own.
Monday this week relatives came to see me so Tuesday after dropping them for the train to London spent the rest of the day in bed.
Food this week tastes a bit better, wine is flowing a bit more but still only a couple of glasses. I just wish I could have a night where I get into bed and sleep till morning instead of having to get up sooooooooooooooo many times for the bathroom.
Spoke to the urology Macmillan nurse the other day they are going to organise the stoma and the neo blad nurse to see me so I can make a decisions on which one oh what fun.
When I was first diagnosed I used to wake up in the morning thinking that someone was going to tell me it was all a joke... well its not and I have to live with it.
Just to keep you up dated had a complete hysterical break down last Wednesday could not stop crying all over trying to sort things out with the back what crap that is.. so not as all together as you all think.. but in true fashion I am doing fine.
Prognosis - good to fairly good I am not planning on going any where yet so anyone who thought it would be easy to get rid of me you must be joking.
The funny think people keep saying how well I look not sure how I should look but .. no extra heads have grown and its not contagious.
The other thing people that have known me a while still not sure what to say to me. Please join the blog and make it interactive.
Natters -I'm smiling because you can't take the bloody "north" out of the girl!!! The typical funny and yes.. not so funny moments of awkwardness, all abide in the same moment. But rest assured, people understand that this is an untypical situation where everything is in play simultaneously ---no filters---you just get what you see. Meanwhile I'm wowed by your honesty and grace that you are approaching this challenge. Head on and head down in full combat mode. Love you ....Fixx
ReplyDeleteHello Nat. Was delighted to have found out how to do this - but then it didn't work? So, am trying again today.
ReplyDeleteYou have really made me think - both seeing you and reading your blog. You are right. Sometimes knowing how to express what to say about the news of your illness left me lost for words. I know how platitudes can be well meant and can also miss the point sometimes - so, please forgive me for any. Life is both an unpredictable pain and a stimulating adventure. It is also just full of ordinary routines of which yours have been turned completely upside down. You are very brave. None of us really expects the unexpected or imagines something will happen to them, a friend or family member; until it does. Who knows the challenges or triumphs we are going to face in the next moment. I was complaining about washing/work/money and had huge fall outs with daughter almost daily last week. You reminded me to get get some perspective. Your blog is also testament to openness and how much it means, (how important it is) to share life with people; for which I have both admiration and respect. (You have really made me think about my whole family and the future, and consider my role in building positive relationships.) I think about you often, wondering how you are feeling - emotionally. And, always wish you wellness throughout the next phases of your treatment.
Hey ho. Take care, you. Love Annie.
Ps: Fingers crossed this works.....